http://joannab.wordpress.com/2007/07/17/a-little-break-in-a-bad-cycle-of-pain-happy-me/ My experience with New Daily Persistent Headache (NDPH)... Sun, 27 Jul 2008 00:46:12 +0000 http://wordpress.com/ hourly 1 http://joannab.wordpress.com/2007/07/17/a-little-break-in-a-bad-cycle-of-pain-happy-me/#comment-1608 Caroline Mon, 12 Nov 2007 22:59:56 +0000 http://joannab.wordpress.com/2007/07/17/a-little-break-in-a-bad-cycle-of-pain-happy-me/#comment-1608 Hello, I've been looking at your blog off and on and I thought I'd leave a response, even though you wrote this in July. I have had NDPH since March 16th of 2006, following walking neumonia, a double ear infection and a sinus infection(all at once). I was 29 at the time. You must by now be off topomax. I went on a tiny dose of topamax in July and could not tolerate it. I call it the idiot drug because that's what I became. I was a complete blob unable to remember enough to carry on a conversation. I was unwilling to take any higher dose and read enough to know it really doesn't work anyway. I am currently taking nortryptaline which worked miracles for me the first 2 months. (That is after I got over the side effects of mouth infections and sores and a urinary tract infection.) The miracle was that I was nearly headache free. It was the first of many drugs that worked. But that is all over now. I am trying to very very slowly go up in the dose because of my sensivity to the side effects, but it is no longer helping. I am getting really discouraged. My neurologist is not very proactive and won't give me any pain meds. Not that I really want them anyway, but he just expects me to tolerate living with chronic pain. There are no answers with this diagnosis. Oh well. Good luck- Hello, I’ve been looking at your blog off and on and I thought I’d leave a response, even though you wrote this in July. I have had NDPH since March 16th of 2006, following walking neumonia, a double ear infection and a sinus infection(all at once). I was 29 at the time. You must by now be off topomax. I went on a tiny dose of topamax in July and could not tolerate it. I call it the idiot drug because that’s what I became. I was a complete blob unable to remember enough to carry on a conversation. I was unwilling to take any higher dose and read enough to know it really doesn’t work anyway. I am currently taking nortryptaline which worked miracles for me the first 2 months. (That is after I got over the side effects of mouth infections and sores and a urinary tract infection.) The miracle was that I was nearly headache free. It was the first of many drugs that worked. But that is all over now. I am trying to very very slowly go up in the dose because of my sensivity to the side effects, but it is no longer helping. I am getting really discouraged. My neurologist is not very proactive and won’t give me any pain meds. Not that I really want them anyway, but he just expects me to tolerate living with chronic pain. There are no answers with this diagnosis. Oh well. Good luck-

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