Comments on: I feel like I wrote this article… http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/ My experience with New Daily Persistent Headache (NDPH)... Sun, 27 Jul 2008 00:46:12 +0000 http://wordpress.com/ hourly 1 By: lilacgrl524 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-631 lilacgrl524 Mon, 16 Jul 2007 23:30:40 +0000 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-631 Bill, I am so sorry that your wife (I will assume that is Norma?) is experiencing such headaches. It is possible that she is suffering from NDPH, but only a doctor can truly diagnose that - there are a handful of factors that are included in the diagnosis. Having had the spinal tap was probably a good idea - I had one to really rule out a lot of infections and whatnot. I am also working with my second headache specialist - a main reason for this is because I was discouraged with the rate at which the 1st doctor was moving me along with trying new things. I was not having any improvement at all until I was referred to where I am now, and have made some great strides. I am NOT out of the woods by any means, but NDPH is difficult to treat. I would basically just suggest that if your wife feels that she has spent a great deal of time with her specialist and has not experienced any kind of improvement or made any kind of headway, it never hurts to research and look elsewhere for care. When it's your health, it is YOU (and of course your family or caretaker) who decides what you will or will not try next... a doctor cannot force you to continue with him or her. Best of luck to her, and I wish you luck as well as a caretaker and obviously supportive husband. Joanna :-) Bill, I am so sorry that your wife (I will assume that is Norma?) is experiencing such headaches. It is possible that she is suffering from NDPH, but only a doctor can truly diagnose that – there are a handful of factors that are included in the diagnosis.

Having had the spinal tap was probably a good idea – I had one to really rule out a lot of infections and whatnot. I am also working with my second headache specialist – a main reason for this is because I was discouraged with the rate at which the 1st doctor was moving me along with trying new things. I was not having any improvement at all until I was referred to where I am now, and have made some great strides. I am NOT out of the woods by any means, but NDPH is difficult to treat.

I would basically just suggest that if your wife feels that she has spent a great deal of time with her specialist and has not experienced any kind of improvement or made any kind of headway, it never hurts to research and look elsewhere for care. When it’s your health, it is YOU (and of course your family or caretaker) who decides what you will or will not try next… a doctor cannot force you to continue with him or her.
Best of luck to her, and I wish you luck as well as a caretaker and obviously supportive husband.
Joanna :-)

]]> By: Norma http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-630 Norma Mon, 16 Jul 2007 23:17:34 +0000 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-630 My wife has been complaining of a "Heavy Head" for about 3 years. She has had all the recommended test incl a spine tap with everything okey but the headaache is continu al. She's over 80 and currently seeing a headache doctor with no change. Any advice or suggestions. It sure sounds the same as your NDPH. Bill My wife has been complaining of a “Heavy Head” for about 3 years. She has had all the recommended test incl a spine tap with everything okey but the headaache is continu al. She’s over 80 and currently seeing a headache doctor with no change. Any advice or suggestions. It sure sounds the same as your NDPH. Bill

]]> By: lilacgrl524 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-157 lilacgrl524 Tue, 26 Jun 2007 00:12:04 +0000 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-157 Thanks for visiting, Anne. I am wishing you luck with your masters... I'm still working on getting my teaching licensure. Do you already teach/what level? It's definitely a big plus when coworkers are receptive to health issues, that's for sure!! Keep in touch :-) joanna Thanks for visiting, Anne. I am wishing you luck with your masters… I’m still working on getting my teaching licensure. Do you already teach/what level? It’s definitely a big plus when coworkers are receptive to health issues, that’s for sure!!
Keep in touch :-)
joanna

]]> By: Anne http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-156 Anne Mon, 25 Jun 2007 23:51:30 +0000 http://joannab.wordpress.com/2007/06/11/i-feel-like-i-wrote-this-article/#comment-156 Hi, I stumbled across your website recently. I feel the same way you do about the article- it sounded way too much like my life. I have had new daily persistent headache since 10/28/1997 when I was 17. I am now 26. (Also I am working towards a masters in education as well. So far, everything has gone very well and the teachers have been great about the migraine.) Sailingm Hi,

I stumbled across your website recently. I feel the same way you do about the article- it sounded way too much like my life.

I have had new daily persistent headache since 10/28/1997 when I was 17. I am now 26.

(Also I am working towards a masters in education as well. So far, everything has gone very well and the teachers have been great about the migraine.)

Sailingm

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